First Spanish/English Book on Spina Bifida For Children Available Free
The first Spanish and English book on spina bifida for children has just been published by Childrens Hospital Los Angeles, through a grant from First 5 LA.
Right Under My Nose, written by children's bibliotherapist Claire Austin and psychologist Stacey Mizokawa, is intended to help children as young as 3 years old to learn coping skills related to spina bifida, the most common permanently disabling birth defect in the United States.
An estimated 70,000 people in the U.S. are currently living with spina bifida, a neural tube defect that happens in the first month of pregnancy when the spinal column doesn't close completely.
"The book is an important resource for parents, who often struggle with how to talk with their children (the affected child and his/her siblings) and other members of their family about spina bifida," said Mizokawa, who heads the spina bifida program at Childrens Hospital.
With three inter-related sections: a story, tips for parents and caregivers, and activity pages for children, the book provides natural opportunities for discussion.
Written with the guidance of a team of parents, children, doctors, nurses, therapists, psychologists, and nutritionists, Right Under My Nose portrays a child with disabilities as a hero who can solve problems and accept himself.
Four thousand copies will be distributed statewide through clinics, libraries, schools, and other locations. The on-line interactive edition is available at www.myspinabifidabook.org in English and www.milibrodeespinabifida.org in Spanish.
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